
Before our Shalebug flew the coop and grew his angel wings, he was becoming quite the little character. He could hobble about on flat surfaces, he could crawl quick as you could blink an eye and he was an expert at giving high fives. After years of watching him be nothing more than an eating and pooping baby machine, it was thrilling to watch him finally “get” things. As Boo said, it was like watching someone turn on a light switch.
That is not to say he was learning how to tie his own shoelaces or suddenly knew his ABC’s. Cripes, he still hadn’t uttered a word in his almost five years and I was fairly sure he never would. He couldn’t put the pieces of a baby puzzle in the holes and I shudder to think of how hard it would have been to hold a pencil. All that aside, he was learning, in leaps and bounds.
And it was fun to watch. Just like it was when Fric and Frac learned how to walk and talk. Or finally master toilet training. (All though, we still haven’t managed to not pee all over the freaking toilet. And it has been nine years, dear internet. That’s a lot of pee to be wiping up.)
Somehow, with the Shalebug, the rewards were all the more sweeter. I think it was because I had been around this block before. I was older and wiser and more aware. And I saw my boy struggle to accomplish the very same things his siblings mastered with nary a thought. t was a hard fought battle, and victory was often denied to my boy. But when he mastered something, the world was an amazing, brighter place. For all of us.
We miss that. Not just me, but his father, and his brother and sister. We miss the joy we felt when he accomplished a small task. We miss him.
Part of the reason I took the summer off blogging was to find me. Suddenly, at 30, I found myself at a crossroads, with no visible path. All of a sudden the world was my oyster, no longer confined by the constraints of having a handicapped child. Suddenly, I was free to leave the kids, and just hire the 15 year old neighbor to babysit. I didn’t have to worry about car seats and wheelchairs and feeding tubes. Medication schedules or teacher aides.
I could get a job without worrying about finding a daycare to suit my child. I could go back to school. I could do anything – except take care of my Shalebug. Which is the one thing I want most in the world.
It didn’t bother me that one day I would have to let him go, perhaps put him in an adult facility. I couldn’t predict the future, and I refused to imagine the worst case scenario. I refused to bind him by my imagination. Nor was I living behind rose colored glasses. I fully accepted that I would be chained to a grown up child for the rest of my days, as would his siblings.
But none of this mattered, because of the love we all felt for Bug. It was, and still is, staggering.
Leaving me at this crossroad, scratching my head, and wondering what the hell am I going to do with my life?
So, here in my piece of paradise, I have watched Fric and Frac grow and develop. Laugh, cry and argue. I have sat and spent hours researching jobs, careers, educational paths. I have been offered a reporting position at the local television news station. My career as a professional gardener has flourished into what could be a very lucrative career if I choose. The school where Bug went to has offered me an aide position.
I have options. I have the finances to pursue those options. I have more choices than I could shake a stick at. And the only thing that interests me is being a mommy.
But getting preggers again is an option that can’t be placed back on the table. Which leaves adoption.
Many hours of soul searching and nose sniffling have been devoted to the idea. Could we do it? Is it fair to Fric and Frac? Would the rest of the family accept a child that didn’t have albino white hair and sky blue eyes? It was a hard battle for Boo and I, to have the extended family accept Bug. Could we ask them to do it again, with a child that had none of their blood running through their veins?
Did we want to?
The answer is simply, yes.
So we have started the adoption proceedings. And our application is being fast tracked because we have applied for a special needs child. None of those healthy kids for us. No sirree. We only want the broken ones, Ma’am.
So I, the Redneck Mommy, who am not a redneck at all, am expecting my fourth child. I’m scared terrified of what the future holds for us. But I haven’t been this exhilarated in, well, ever.
We have faced our critics, and been embraced by our supporters. Sad to say, the numbers are even on both sides.
No, we are not trying to replace our dead son. Yes, I’m sure I want another handicapped child.
Why? Why not? I counter. Because the love Bug gave us, and the skills he taught us was a gift I want to be able to share with the world. The strength we gained as a family unit has cemented our bonds of love. It has made us all into better people. He shaped his siblings into very special kids. I don’t want to spend the rest of my life just remembering those skills.
I want to use them. As a tribute to my boy, who was the strongest person I knew. He taught us to how to love.
Thank you, Skjel. Mommy loves you.






dreadmouse
That is an amazing gesture of love and strength. I don’t think that I could do it. God forgive me, I wouldn’t have your strength.
Best of luck to you. I’m going to go hug my daughter now.
Anonymous
Congratulations!! I’m so happy and excited for you!!
~*~ D ~*~
Please count me on the side of your supporters, I pray that you will be given a child very soon! Any child that ends up with you for a mom is a very lucky child indeed.
Her Bad Mother
I don’t know what to say that won’t sound banal. Your words, your story, make my heart squeeze and expand and hurt, in a good way, but a kinda painful way.
Damn, woman, you are extraordinary in your ordinary life. And your Skjel was undoubtably extraordinary, to have helped shaped this woman that you are.
That probably didn’t make sense. Hell. I’m just so freaking blown away by you.
B.E.C.K.
You are wonderful, and you are doing a wonderful thing. The child who finds his or her way to you will be blessed indeed, and will bless you right back.
Daisydee
Hey T!! Good luck with the adoption. You are an amazing person. I admire your strength. You have a beautiful family. I am envious!! I’d like to steal Boo. Instead I’ll just dream about finding my own.
You my dear, inspired me to begin my own blog. TOOO FAR!!!
jellyhead
Holy moley, the comments section has gone berserk! (I read your post yesterday, and felt so emotional I wasn’t able to string a sentence together)
T, I’m sure you are capable of all the paid jobs you have been offered, and more. Yet the ‘job requirements’ for succesfully parenting a child with a disability are even more exacting. You have the skills and the compassion, and you will shine as the mother of your new addition, your fourth child!
Ellen, John & Sophia
I missed you! My husband happily informed me that your blog was back. You’re the only one of my faves that he reads- must be the 20 acres (we have 17 in Maine) and the love. I can’t wait to follow the adoption story. Congratulations!
Rose
I lost my daughter at five weeks. I have tears in my eyes as I sit here and read your touching post. I wish the best for your entire family. I’m glad that you found my blog.
roxylynn
I just wanted to let you know that I support you and your decisions 100%. You are a terrific mother and any child will be lucky to call you mommy. Like any other blogger has stated, you need to do what is best for you and your family and it doesn’t matter what anyone else says. I will always be there for you in any which way I can. I love you so much, you are the sister I never had. My prayers are with you and your family every night before I go to bed. I must say it again, I love you, and your family so much. You are the family I choose to have.
carrie
Oh my, I am speechless. This is a beautiful, beautiful post.
I am in awe.
Congratulations to you and your expanding family!
Carrie
It's okay, Sweetie
I should post a blank comment to signify how speechless I am. I’m so glad I read this. You should seriously consider publishing your story so others can learn about Shalebug’s legacy.